Objectives: Monitoring, Surveillance, Evaluation & Research
Evaluation and Research 1
Continue to monitor and carry out surveillance activities using existing systems, which allow for further analysis.
- Continue advocacy, funding and support for the following existing data collection systems:
- Behavioral Risk Factor Surveillance System (BRFSS)
- Colorado Central Cancer Registry (CCCR)
- Colorado Women's Cancer Control Initiative (CWCCI)
- Tobacco Attitudes and Behavior Survey (TABS)
- Youth Risk Behavioral Survey (YRBS)
- Youth Tobacco Survey (YTS)
- Child Health Survey (CHS)
- Pregnancy Risk Assessment Monitoring System (PRAMS)
- Vital Statistics
- Use cancer-related data for monitoring and surveillance of cancer risk factors, preventive behavior, incidence, stage at diagnosis, treatment, survival, rehabilitation, race/ethnicity, socioeconomic status, insurance status and mortality.
- Determine the feasibility of linking cancer screening history to the cancer registry.
- Measure and monitor under-served populations (i.e., low socioeconomic status, uninsured). Consider gaining education and household income data from hospitals and improving the quality of data on insurance status.
- Compare Colorado cancer data related to Healthy People 2020 targets by race/ethnicity.
- Review Colorado's cancer data to identify any gaps that may exist in Colorado's data systems (use Georgia's Institute of Medicine (IOM) report for comparison).
Evaluation and Research 2
Annually evaluate the Colorado Cancer Plan with the Colorado Cancer Coalition and task forces to determine the success of implementation.
- Continue to convene a surveillance and evaluation subcommittee experienced and knowledgeable in monitoring and surveillance, evaluation, and research.
- Develop and implement a comprehensive monitoring and evaluation plan to assess the implementation of objectives and strategies of the Colorado Cancer Plan.
- Assess and evaluate the efficacy of the objectives and strategies of the Colorado Cancer Plan by determining impact on changes in cancer-related outcomes.
- Extend the Patterns of Care Study to Colorado (patterned after Georgia's IOM).
- Report evaluation results at each annual Colorado Cancer Conference.
Evaluation and Research 3
By 2015, develop data sources for those objectives and strategies for which baseline data currently do not exist.
- Identify gaps in the data (use Georgia's IOM report for comparison).
- Determine potential data sources or develop data sources as needed.
- Propose modifications to any of the existing data collection mechanisms if data elements are inconsistent, lack specificity, or are not used.
- Make recommendations on data that need to be added to increase or create capacity for monitoring/surveillance, research, and evaluation.
- Establish baseline data for any other chapters (e.g., palliative care, health disparities) for which baseline data should be determined.
Evaluation and Research 4
Yearly, evaluate the efforts of the Colorado Cancer Coalition.
- Assess Coalition member satisfaction.
- Assess Coalition member activities on a regular basis to determine if they are implementing the Colorado Cancer Plan.
- Identify under-represented groups/regions for membership involvement (e.g., African-Americans, OB-GYN, rural, contact for the uninsured).
Evaluation and Research 5
On an annual basis, compile and disseminate data identified in the aforementioned Objectives 1, 2, 3, 4 (listed in this chapter) to provide a full disclosure and impartial reporting on the plan's progress, accomplishments, and opportunities for improvement.
- Continue funding or advocate for funding to incorporate these sources of data into statewide reports.
- Collaboratively disseminate reports and information in a meaningful manner to appropriate audiences.
- Increase the Colorado Cancer Coalition's involvement in writing and disseminat- ing reports by developing a communication plan for the public (i.e., through press releases).
- Increase media exposure to educate the public and professionals about cancer in Colorado.
- Produce an Annual Report from the Coalition including prevalence rates, trends, and other pertinent studies related to previously mentioned data sets.
- Colorado Cancer Coalition's website.
- Establish plans and implement the training of potential users (particularly non-traditional users) to appropriately use available information to increase professional and public understanding and education about cancer and its impact on Colorado citizens.
Evaluation and Research 6
Promote the importance of conducting research on cancer prevention, treatment, and survivorship.
- Establish and maintain a tracking system of research projects.
- Develop a research agenda working in coordination with the task forces to prioritize research conducted on cancer prevention (including screening), treatment, and survivorship.
Evaluation and Research 7
By 2015, increase the scope of data on cancer risk factors and preventative behavior throughout a person's lifetime.
- Explore development of data collection to capture this information.
- Establish a plan to gather information on children and cancer-related behavior.
- Add questions to the Behavioral Risk Factor Surveillance System (BRFSS), which inquire about behavioral issues with children in the household; for example, second hand smoke exposure.
- Produce a report on prevalence rates, trends, and other pertinent studies related to these data.
- Consider examining the relationship between obesity and cancer trends in Colorado using data from hospital records.
- Work with health care organizations to develop mechanisms for gathering and reporting cancer-related behaviors (i.e., risk factors and screening).
Evaluation and Research 8
By 2015, develop enhanced cancer registration capabilities.
- Assist the Cancer Registry in developing partnerships with large private oncology clinics to obtain outpatient treatment information.
- Promote recruitment and retention of certified tumor registrars in Colorado.
- CCCR Director or other CCCR staff will make presentation to Health Information Management classes (at Regis University and/or Arapahoe Community College) about the cancer registry profession.
- CCCR will provide regular training sessions for Colorado registrars to promote continuing education.
- Develop measures of socioeconomic status beyond race/ethnicity that are collected by the CCCR.
- Use cancer registry data for physician education and/or notification projects. (eg., alerting physicians that specific patients are at increased risk for "X" because they have a set of conditions "Y.")
- Facilitate data linkages between CCCR and other databases to obtain follow-up information (e.g., Medicare and Medicaid, for example).